First Steps with CF Care Package: Share Your Feedback

First Steps with CF Care Package Feedback

This short survey is best completed soon after you receive the First Steps with CF Care Package. Your feedback will help us learn what was helpful, what was easy to use, and how we can make future care packages even better for families. Completing this survey should take approximately 7- 10 minutes.
This survey is intended only for individuals who received the First Steps with CF care package through their CF clinic. If you accessed any support materials online, please do not complete this survey.
About you & your family

We'd like to start by learning a little bit about you and your family and the timing of when you received the care package.
Which Cystic Fibrosis Clinic did you receive your care package from?
The list is organized by province to make it easier to find your local clinic.
What is your relationship to the child with cystic fibrosis?

Other (please specify)
How old was your child when you received the care package?
How long has it been since you received your care package?

Other (please specify)
We understand that you have a child with cystic fibrosis. To provide context for your feedback on the care package, please tell us about any other connections you may have to the cystic fibrosis community.

Thinking about before and after your child's diagnosis and receiving the care package, please answer the following.

Rows	Not at all	A little	Some	A lot
Before my child's diagnosis, I was familiar with cystic fibrosis.
Before receiving the care package, I was familiar with Cystic Fibrosis Canada.
After receiving the care package, I know more about cystic fibrosis.
After receiving the care package, I know more about Cystic Fibrosis Canada.

Future Feedback

As you continue navigating life with CF, we understand that your needs and experiences may change. We'd love to learn how the care package supports your family over time and how we can improve it for future families.
Would you be willing to complete another brief survey in about six months once you've had more time with the care package?
Please provide your name and contact details below. In about six months, we will contact you with the follow-up survey.
Full Name

First NameLast Name
E-mail
example@example.com
Should be Empty:

Rows	Strongly agree	Agree	Not sure	Disagree	Strongly disagree
The information in the care package is easy to understand.
The care package helped me learn about cystic fibrosis.
The care package helped me feel supported.
The care package helped me feel more confident caring for my child with CF.
The care package connected me to helpful resources and support.

Rows	Very useful	Somewhat useful	Not useful	Haven't used yet, but expect to use it	Haven't used yet and don't expect to use it
Supportive Guide for the First Years (print copy)
Letter from Parents & Guardians
Diaper cream
Barrier ointment
Pill containers
Lunch bag
Oral medicine dispenser
Soft tip spoons
Teddy bear heat pack
Digital micro-site (includes digital Supportive Guide for the First Years and links to other resources)
Digital worksheets and checklists
CF Canada resource magnet (QR code)

First Steps with CF Care Package Feedback